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PALLIATIVE CARE IN CHILD NEUROLOGY: THE MORE YOU LOOK, THE LESS YOU SEE

Vishal SONDHI1,
Juhi GUPTA2,
Viraj SANGHI3,
Roop GURSAHANI4,
Sheffali GULATI2

1Department of Pediatrics, Armed Forces Medical College, Pune, India
2Child Neurology Division, Center of Excellence & Advanced Research
on Childhood Neurodevelop-mental Disorders, Department of Pediatrics,
All India Institute of Medical Sciences, New Delhi, India
3SRCC Children’s Hospital, Mumbai, India
4P.D. Hinduja National Hospital, Mumbai, India
E-mail: sheffaligulati@gmail.com
Received: 30-August-2020
Revised: 29-September-2020
Accepted: 06-October-2020
Online first: 07-October-2020

Abstract

Palliative care (PC) is holistic care of a child with a severe illness and his/her family which should begin soon after the diagnosis of a life-limiting illness is made. Communication forms the cornerstone of PC which begins with breaking the bad news in the right manner, continues in discussion with the family about their choices and expectations through life, and culminating in end-of-life and bereavement care. Raising awareness and devel-oping PC services will eventually lead to a reduced burden on health-care systems, higher satisfaction rates and better quality of life for the children and their families.

 

Key words: palliative care, child neurology, communication

 

Citation: Sondhi, V., Gupta, J., Sanghi, V., Gursahani, R., Gulati, Sh. Palliative Care in Child Neurology: The more you look, the less you see. Journal for ReAttach Therapy and Developmental Diversities. https://doi.org/10.26407/2020jrtdd.1.36

Copyright ©2020 Sondhi, V., Gupta, J., Sanghi, V., Gursahani, R., Gulati, Sh. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0)

Corresponding address:
Sheffali GULATI
Child Neurology Division, DM Paediatric Neurology Programme,
Faculty in-Charge, Centre of Excellence & Advanced Research
on Childhood Neurodevelopmental disorders, Department of Pediatrics,
All India Institute of Medical Sciences, New Delhi, India
Phone: 9868397532
E-mail: sheffaligulati@gmail.com

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