Development of Autism Support Groups in Sikh Community of Canada- Case Studies

Abstract

Introduction- This paper is an attempt to understand the struggles and challenges of  Sikh parents who migrated to Canada and are raising their autistic child. The researcher tried to understand and find how difficult it was for parents personally and socially. What kind of and how much help from the community support systems was available to such parents.

Methods- The researcher went through all the available online platforms where these parents have made their existence visible to the world, be it YouTube, Twitter, Facebook, Instagram handles and  established autism support groups of Canada. Secondary research of Canadian medical websites and Canada National Public Health Services was also taken up.

Findings- It has been found that though the number of Sikh migrants in Canada is quite high and the community has a very powerful existence there, all this has not led to the development of strong community support systems to help autistic children or their parents. Infact, within the community, the disability is treated like a taboo which makes communication among the community members more difficult. The diagnosis, in fact,  becomes a reason for shame and guilt for parents. However, some parents are not only raising their autistic children well but are also embarking on a journey to create a strong community support system, to help children with autism and their parents. They are not only creating awareness but an acceptance for autism.

Conclusion- Community Support Systems are a big help and they should be created by the community members. Disability should not be treated as a taboo. Community members have to come together to help each other. Community support systems are in fact a ready available source of help, security, health and mental peace.